A friend was having her Bachelorette party this weekend and while I was excited about going, making plans in the evening can be dicey for me. I try to lower the amount of Parkinson’s medications at night to prevent any sneaky Dyskinesia from keeping me up. This means I have to take more pills in […]
Search Results for: Deep Brain Stimulation
Letters From My Parents
I was spring-cleaning last weekend, which is something that gives me immense pleasure. I know… I‘m bizarre. I start by organizing my home and disposing the things that I hold onto needlessly… and yes, that does mean the red dress that just doesn’t quite fit right, but I still believe that I can magically morph […]
Arriving At The World Parkinson Congress
There is always something comforting about walking into a room and spotting another Parkie, but to walk into a hotel filled with your peeps is like a dream. Parkinson’s can feel like you are going into battle alone with nobody to watch your back. So when I got to Portland for the World Parkinson Congress […]
Tips For Traveling to WPC
It is almost time for the World Parkinson’s Congress (WPC) in Portland and I’m as giddy as high school girl the night before prom. On top of being an Ambassador for the event, I going to make new friends, eat super yummy food and learn what’s new in the Parkinson’s world…. and I mean […]
Perky’s Picks-Tiger Tail, Lauren’s Hope, and Conair
Before I continue, please read my small print disclaimer: * In an effort to be open and transparent with my readers, I was not compensated for this post, however some of the products mentioned in this blog post I received a free sample in exchange for a review on my website. Regardless, all opinions […]
What I Can Do
I have been having a little bit of a challenge with my Parkinson’s disease lately. It has been, shall we say frustrating… yes, I can think of more descriptive words to describe the current state of my health, but I will refrain. I used to be able to know my body and how my symptoms […]
A Duopa Pump Question
One of the main reasons I started the Perky Parkie blog was to extend my reach and help connect the Parkinson’s community. Living in Southern California, I’m limited on the amount of exercise classes and support groups I can facilitate. Once I realized that I couldn’t be two places at once and my Parkinson’s made traveling difficult, I […]
What Happens If I Turn My DBS Off?
I get asked quite frequently, “If you had to do it all over again, would you still elect to have Deep Brain Stimulation surgery (DBS) to help control your symptoms of Parkinson’s disease?” Why do I post this now? Well Monday, I will be going into the operating room and having my stimulators… AKA […]
What Works For Perky, Might Not Work For You
Every Parkie has to go though the process of finding what drug cocktail works best for them. Maybe it’s a Dopamine agonist, with or without Sinemet. Then again it could the Neupro patch slapped your arm combined with Deep Brain Stimulation surgery. Or maybe brain surgery creeps you out, but the thought of Duopa, a […]
Politics in Parkinson’s
I have been told that Politics can be found in everything, but I never thought that I would run into them when I became a proud member of the Parkinson’s community. When I was diagnosed 5 years ago, I had no idea what it meant to have Parkinson’s. I was terrified. I had never met […]