One of the main reasons I started the Perky Parkie blog was to extend my reach and help connect the Parkinson’s community. Living in Southern California, I’m limited on the amount of exercise classes and support groups I can facilitate. Once I realized that I couldn’t be two places at once and my Parkinson’s made traveling difficult, I […]
What Is A Hero?
This last weekend, I made the long journey to the state of Kansas. To the city of Hays to be specific. I was following the yellow brick road to attend the Emerald Ball and receive an award acknowledging my “Outstanding Achievements in the Parkinson’s community.” First day in Hays, I am doing my part to […]
Blue Blankin
When I was a baby, besides being freakin’ adorable, I had a security blanket name Blue Blankin. Blue was a comfort for me when times got scary or stressful. I could wrap myself up in her and I felt safe. It is incredible that a small crochet blanket would become such an important part […]
What It Feels Like To Be “Off”
Many Parkies use the words “on” or “off” when describing their Parkinson’s disease (PD) medication. The term “on” relates to if your medication is effectively working within your body and your symptoms are under control. Similarly, if your medications are “off”, you’re not feeling the effects of the medication. This can be called a “dose […]
Before I Had Parkinson’s-Part Deux
Since I first blogged about my life “Before I had Parkinson’s”, more things have come to mind that I don’t want to leave out… so I will write a Part Deux. Sometimes it’s hard to think about the time prior to a diagnosis because when you have a neurological condition, you learn to adapt, […]
What Works For Perky, Might Not Work For You
Every Parkie has to go though the process of finding what drug cocktail works best for them. Maybe it’s a Dopamine agonist, with or without Sinemet. Then again it could the Neupro patch slapped your arm combined with Deep Brain Stimulation surgery. Or maybe brain surgery creeps you out, but the thought of Duopa, a […]
Politics in Parkinson’s
I have been told that Politics can be found in everything, but I never thought that I would run into them when I became a proud member of the Parkinson’s community. When I was diagnosed 5 years ago, I had no idea what it meant to have Parkinson’s. I was terrified. I had never met […]
My Trip To Summer Camp
It’s 6:40am and I am standing at the corner of Delores and 18th street in San Francisco waiting for a bus to take me to summer camp. With a duffel bag in tow, I say my name to a woman wearing bright colors, who is way too cheerful for that time of day. That would […]
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