I am feeling a little stagnant. Almost a little complacent. Feeling uninspired. I am proposing that we kick the New Year with a Parkie challenge! Try to control your enthusiasm people. Now, I have come up with a 4-week schedule that starts the first week in January that will be full of ideas and suggestions that […]
Happy Holidays from Perky and Crash
It’s the holiday season and I am feeling very festive! Crash and I pose in our best holiday garb with the intention of putting positive energy out into the universe… is it working? Can you feel the love? We are with my family in Arizona and enjoying some COVID free time together. We wanted to send our […]
Medication Mishap
I lie awake in my bed feeling rigid and frozen. I glance at the clock… 2:30 am. How am I not able to sleep? I took my night-time meds. There’s no reason I should feel this bad. I start to go down my list… Did I have protein? Well, seeing as I didn’t partake in the Brazilian BBQ for […]
Why I’m Thankful I Have Parkinson’s
Yep, you read that correctly… I am thankful I got Parkinson’s disease. Now, I know that the title of this post can be confusing but before you chuck your laptop, or mobile phone across the room, hear me out. When times get tough, I must find something good that came out of my challenges. Like my blog post […]
When Your RBF Hinders Communication
I’m really not a rude person, but sometimes my Parkinson’s makes me look, shall we say… unapproachable. I feel that I’m happy-go-lucky and always have a smile on my face until I see my reflection. I have a resting bitch face. What the heck is that? Wikipedia defines it as, “a facial expression, which unintentionally appears […]
No Bones Day
I was scrolling through my social media platforms the other day and I fell into the rabbit hole of TikTok and Instagram. Once you start you can’t stop. One video led to the next one and before I knew it, I’d lost hours of my life that I will never get back. I do have to admit, although […]
Ready to Play Parkinson’s Truth or Dare?
We all know the game “truth or dare”… oh, those horrific teenage memories. I will review the rules for those who have been living under a rock. It’s a game for 2 or more participants. Players are given the choice between answering a question truthfully or performing a “dare”, both of which are set by […]
Was it all just a dream?
Sometimes I have trouble determining what is a dream and what is reality. I know I am not alone in this. I can say with confidence that we all have experienced this confusion at some point. Let’s imagine you get home after a long day of antiquing. Don’t ask me why I chose that activity, never done […]
The first time you noticed Parkinson’s
We all have stories that sound like this, “I was officially diagnosed on __________ (date), but looking back now, I had Parkinson’s symptoms for __________ (years) before.” Because there are no definitive tests that can easily diagnose the disease, it takes a whole lot of confusion, guessing, medical appointments, and trial medication regimens. Furthermore, Parkinson’s can […]
I’m all charged up- DBS battery replacement
Many of you already know my adventures with getting Deep Brain Stimulation surgery (DBS), but for those who don’t… a quick review. I was first diagnosed with Parkinson’s disease at age 32, but I had symptoms for years before the official confirmation. I found excuses for my slowness, rigidity, or other uncontrollable movements. But I never thought […]
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