When I was a baby, besides being freakin’ adorable, I had a security blanket name Blue Blankin. Blue was a comfort for me when times got scary or stressful. I could wrap myself up in her and I felt safe. It is incredible that a small crochet blanket would become such an important part […]
A Letter To My Family
To My Family, Now that I have officially been diagnosed for 5 years, I am coming to the disheartening reality that my Parkinson’s disease is progressing. I can see the deterioration in my physical health and the medications that I have used to keep symptoms under control are now becoming unpredictable. I find myself unsure […]
What It Feels Like To Be “Off”
Many Parkies use the words “on” or “off” when describing their Parkinson’s disease (PD) medication. The term “on” relates to if your medication is effectively working within your body and your symptoms are under control. Similarly, if your medications are “off”, you’re not feeling the effects of the medication. This can be called a “dose […]
Before I Had Parkinson’s-Part Deux
Since I first blogged about my life “Before I had Parkinson’s”, more things have come to mind that I don’t want to leave out… so I will write a Part Deux. Sometimes it’s hard to think about the time prior to a diagnosis because when you have a neurological condition, you learn to adapt, […]
What Works For Perky, Might Not Work For You
Every Parkie has to go though the process of finding what drug cocktail works best for them. Maybe it’s a Dopamine agonist, with or without Sinemet. Then again it could the Neupro patch slapped your arm combined with Deep Brain Stimulation surgery. Or maybe brain surgery creeps you out, but the thought of Duopa, a […]
Politics in Parkinson’s
I have been told that Politics can be found in everything, but I never thought that I would run into them when I became a proud member of the Parkinson’s community. When I was diagnosed 5 years ago, I had no idea what it meant to have Parkinson’s. I was terrified. I had never met […]
The 5th Annual Parkinson’s Unity BBQ
Get your grass skirts ready and be sure to RSVP for the 5th annual Parkinson’s Unity BBQ.
My Trip To Summer Camp
It’s 6:40am and I am standing at the corner of Delores and 18th street in San Francisco waiting for a bus to take me to summer camp. With a duffel bag in tow, I say my name to a woman wearing bright colors, who is way too cheerful for that time of day. That would […]
Time For My Digital Detox
Well folks, the time has come for me to pack my duffel bag (with enough sassy outfits to cloth a small country), grab my bug spray, and stash my Sinemet. I am going off the grid! My flight to San Francisco leaves tomorrow, where I will be meeting other campers from around the world to […]
Perky Parkie’s Pet Peeves
Perky Parkie’s Pet Peeves… now that is a mouthful! Try to say it 10 times fast… you can’t, it’s impossible. But what isn’t impossible is creating a list detailing some of the things that drive me bonkers! Just because I am the Perky Parkie doesn’t imply that I am Pollyanna all the time. I have […]
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