I am super-stoked to share with you a new project that I have had the honor to be involved with. I am now an official contributor for Health Union’s newly launched website Parkinsonsdisease.net This site has become a great addition to the Parkinson’s community because you can find information about research, diagnosis, treatment, caregiver support, symptoms… basically everything you wanted (or didn’t want) to know about Parkinson’s, including my latest post “What Parkinson’s Isn’t: 6 Myths Debunked” hope you check it out! Enjoy!
What is Parkinson’s disease? This is a question many of us have asked our neurologists, but the answers can be confusing. This is because we are still learning about this disorder and it’s impact on our lives. However, we do know what Parkinson’s isn’t.
Parkinson’s isn’t curable.
First and foremost, as many of you know, there is no cure for Parkinson’s disease. But before you get too discouraged, if you’re going to get it, now is a great time to be diagnosed with Parkinson’s. We have made such huge medical advances in the last decade alone, that now we have an arsenal of weapons to use against PD. Imagine being diagnosed with Parkinson’s in the early 1900’s… I shudder… {Click here to read more}
Love this article – hate the message! Totally agree with your six, myths. Another that hardly anybody seems to know is that Parkinson symptoms come and go and change as they please. The vast majority of people who see me only see me at my best. The rest of the time, I don’t leave the house. Recently, I was in a hotel room by myself (my husband was having surgery, I thought if I stayed at the hotel that connects with the hospital, I would be able to help him. Ha! ) One day I had been dystonic since 5 am. By 4 pm, I called 911 and got the paramedics to take me to the ER. Would have been a 10 minute walk, but they insisted on transporting me the half block by ambulance. Of course, the bill is the same as if they had taken me across town. I waited in the ER for 2 hours (at least I got a bed with to wait on) and when the doctor finally came, I was coming out of dystonia. Of course, there was nothing he could do – I should know that by now. The dystonia came back with a vengeance as soon as they discharged me. By divine coincidence, some friends who had come to see my husband came to see me first. Praise the Lord for cell phones! They got my wheelchair and got me back to my room.
Your articles are very helpful, Thank You for sharing your information about PD . I really like your writing style. Very insightful. Keep up the good work!
Thank you!